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A MGteam Member asked a question 💭
Bridgewater, NJ

I will be talking to my doctors about this but am just curious about anyone else's experiences. My husband and I are starting our family planning journey and I would like the know what I might be in for. Thanks!

October 18
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Reactions
A MGteam Member

Thank you!
*It might have been me you were thinking about with the diagnosis stuff, I just got a seronegative diagnosis about a month ago.

October 22
A MGteam Member

thank you everyone, I am enjoying the mg team.

October 24
A MGteam Member

Thank you, Arelle. I'm glad you got that sorted out. I have sero negative as well although with other symptoms probably from the stress of mg, to be honest. Congratulations on finding what you're dealing with.

October 23
A MGteam Member

totally depends on your existing state of health, it sounds obvious however your mg symptoms are not going to just get up and go because of pregnancy; general tips such as folic acid and b' complex when trying to conceive will always be helpful and you can ask your ob/gyn, nurse or myasthenia nurse/doc about any interactions with present or future meds. I think I saw you have not yet got a confirmed mg diagnosis? I dont know whether I am remembering that correctly or it was another member. General good health tips will go a long way while adjusting to or awaiting diagnosis, lots of water, maintain your existing fitness routine whilst not starting anything new, especially in first trimesters. Indulge gently cravings whilst not going overboard, you'll feel much better for staying mobile and as well as possible throughout. I hope things go great for you and yours. Pregnancy brings a buzz and glow however it is neccesarily a utilization of your own system so do look after yourself well and be well aware of any flare ups, avoid stress like the plague and keep your weight steady as possible (some gain is perfectly natural.) I gained plenty on my first pregnancy & it was tough.
Extra though will need to go into possible meds during labour and mg interactions, espc when considering elective or unplanned caeserian. (typo) Seek out a friendly and resourceful birthing partner who has your back. x

October 22
MGteam

How exciting that you and your husband are starting your family planning journey! It's completely natural to have questions about what pregnancy might look like with MG. Here's what MGteam members and research can tell you.

Many people with well-managed MG go on to have healthy pregnancies. That said, it's considered a Show Full Answer

How exciting that you and your husband are starting your family planning journey! It's completely natural to have questions about what pregnancy might look like with MG. Here's what MGteam members and research can tell you.

Many people with well-managed MG go on to have healthy pregnancies. That said, it's considered a high-risk pregnancy, so building the right medical team early is really important.

Here are some key things to know going in:

- Flare risk is real but manageable — about 1 in 3 women experience a symptom flare, most commonly in the first trimester or right after birth
- Most MG medications are safe during pregnancy, including pyridostigmine, prednisone, azathioprine, IVIG, and plasma exchange
- Some medications must be stopped, including mycophenolate mofetil, cyclophosphamide, and methotrexate
- Vaginal delivery is encouraged, though forceps or vacuum assistance may be slightly more common
- Epidurals are safe for pain management during labor
- Your baby will be monitored for a couple of days after birth as a precaution Some studies suggest waiting at least two years after an MG diagnosis before conceiving, especially if symptoms aren't fully stable yet. This may help lower the risk of flares during pregnancy.

When choosing where to give birth, look for a hospital with a multidisciplinary team and a strong neonatal unit — just in case. An obstetrician who specializes in high-risk pregnancies is a great addition to your care team alongside your neurologist.

Breastfeeding is also encouraged, even if IVIG or plasma exchange is needed — just something reassuring to keep in mind for later!

October 18

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A MGteam Member asked a question 💭
Bridgewater, NJ