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2 weeks since ivig still have leg weakness. I’m finding I don’t have confidence in walking and using my cane more. Is this common?

A MGteam Member asked a question 💭
Coral Springs, FL
September 27
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Answer Summary

Members responded with warmth and encouragement to a question about lingering leg weakness and confidence issues two weeks after an IVIG... Read more

Members responded with warmth and encouragement to a question about lingering leg weakness and confidence issues two weeks after an IVIG infusion, sharing that patience is often key since results can take months to fully show. Several members described their own experiences, noting that a second round of IVIG often brought more improvement than the first, and many found that overthinking their walking made balance harder. Practical tips included doing balance exercises, keeping a phone or wrist monitor nearby for safety, requesting home physical therapy, and using a walker or cane without shame while strength returns.

A MGteam Member

Yes I’m good in all other aspects thank goodness but I feel my brain is preventing me from walking bc my legs feel weak. It’s just weird. They always say listen to your gut and my gut or my brain is a telling me b careful.

I’ll see how this week goes.

September 27
A MGteam Member

I feel like infusion saved my life, it takes time to really be effective. For me it was six months after the first two treatments that made a huge difference.

September 27
A MGteam Member

Hi Carol so sorry to hear. I just completed ivig on Thursday and somehow contracted the flu. I do not have any weakness issues right now.

I hope your leg improves soon.

Are you feeling stronger in the rest of your body?

September 27
MGteam

It's completely understandable to feel frustrated and uncertain right now. The good news is that it's actually normal for IVIG to take a few weeks before noticeable symptom relief kicks in, so two weeks may still be within that window.

Leg weakness is a recognized symptom of myasthenia gravis, and it can feel unpredictable — Show Full Answer

It's completely understandable to feel frustrated and uncertain right now. The good news is that it's actually normal for IVIG to take a few weeks before noticeable symptom relief kicks in, so two weeks may still be within that window.

Leg weakness is a recognized symptom of myasthenia gravis, and it can feel unpredictable — sometimes appearing quickly or varying day to day. This inconsistency can really shake your confidence when walking. A MGteam member shared something that might resonate: "I was most surprised at how quickly my arms and legs would weaken at certain times." Others have described trouble walking and neck weakness too, so you're definitely not alone in this experience.

A few things worth keeping in mind:

- Weakness with MG often worsens with activity and improves with rest
- Keeping a symptom log can help you and your doctor spot patterns
- If weakness feels like it's spreading or changing, that's worth flagging to your healthcare provider soon

Using your cane more right now is a smart, safe choice — not a step backward. It's worth checking in with your doctor about your recovery progress, especially if symptoms aren't improving in the coming weeks.

September 27
A MGteam Member

Thank you Ken. So happy for you! Yes I know there’s no cure but considering where I was a year ago to now I’ve had major improvement it’s just this leg weakness and off balance feeling is concerning me.

One day at a time. Today I noticed i have more energy so that’s a sign of improvement so maybe I just need to be patient.

September 27

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