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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

OMG, recently diagnosed. Sero negative. I live in Florida. I am getting terrified that my geographic location is gonna work against me.

A MGteam Member asked a question 💭
Bradenton, FL
September 5
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Reactions
A MGteam Member

Take heart love...I'm 69 with Lupus, Ps arthritis, diabetes, fibromyalgia and seronegative mg, plus some other little things. It is manageable, but on difficult days just allow yourself to be. Have a great hot beverage, listen to music, do things that you love to do! I'm looking forward to some porch swing sitting with a nice cup of hot tea...I m really waiting for that! Some days this battered body wins and on the days it doesn't my brain tells me tomorrow will be better! Praying for better days for you! Cheryl

September 8
A MGteam Member

I live in south Louisiana and I’m pretty much homebound until the weather gets cooler. I can’t wait! I’m triple seronegative and heat is my #1 trigger. I’m looking forward to sitting outside and a lower electric bill. We keep the thermostat between 61-65° around the clock during this time of year and the bill is outrageous! I’m going to take that extra money we’ll be saving when it gets cooler and cold, and buying new outdoor rocking chairs to just enjoy being outside. Stay cool!

September 9
A MGteam Member

I’m 71. Also have SN rheumatoid arthritis, glaucoma, fibromyalgia. Kinda too much right now…

September 5
MGteam

First of all, take a breath — a new diagnosis is a lot to process, and it's completely understandable to feel scared. The good news is that seronegative MG, while rarer, is being actively researched and new treatments are emerging.

Florida actually has several major academic medical centers and neurology specialists who Show Full Answer

First of all, take a breath — a new diagnosis is a lot to process, and it's completely understandable to feel scared. The good news is that seronegative MG, while rarer, is being actively researched and new treatments are emerging.

Florida actually has several major academic medical centers and neurology specialists who treat MG, so access to care may be better than you think! Here are some things worth knowing about seronegative MG that might ease some worry:

- It tends to affect younger people and often follows a milder course
- Symptoms are similar to other MG types, so treatment approaches overlap
- A newer drug called efgartigimod has shown promising results specifically for seronegative MG, with the maker planning to seek expanded FDA approval
- Newer testing methods (called cell-based assays) are becoming more widely available and may give a clearer picture of your specific antibody type

The Myasthenia Gravis Foundation of America (MGFA) is also a great resource for finding specialists near you. Connecting with a neurologist who specializes in neuromuscular conditions is the most important next step.

September 5

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