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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Where do you get a medical alert card and a MG packet that lists all meds we should not be given if we go to the ER?

A MGteam Member asked a question 💭
Coral Springs, FL
August 31
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Answer Summary

Members came together to help answer where to find medical alert cards and emergency medication packets for myasthenia gravis, with several... Read more

Members came together to help answer where to find medical alert cards and emergency medication packets for myasthenia gravis, with several pointing to www.Myasthenia.org as a key resource that will mail materials directly to your home without needing a printer or computer. A recurring theme was the importance of having emergency information easily accessible, whether through a hospital on-file record, a wallet card, or a HEAT Kit from www.EosinophilRareDisease.org. Many members expressed gratitude for the question, with some sharing they had never thought to get one before and were now motivated to do so.

A MGteam Member

Just go to www.Myasthenia.org and you will find it , it ask for your name , address and they will send you all the information you don't need a printer or computer you can do it with your phone❤

September 3
A MGteam Member

I am very fortunate Carol, living in Melbourne Australia, as our health system is great! I have to pay very minimal, as it is covered by the govt!
I do not know how people survive having to pay for these expensive services.
I am very grateful 🙏

August 31
A MGteam Member

Fortunately the outpatients clinic that i visit has everything on record, so incase there is a crisis the Hospital has a record of everything 👍

August 31
MGteam

The Myasthenia Gravis Foundation of America (MGFA) is the go-to resource for this! They offer an emergency medical alert packet and card specifically designed for people with MG.

The packet includes:
- An explanation of MG for medical personnel
- A list of medications that can worsen MG (super important for ER visits!)

Show Full Answer

The Myasthenia Gravis Foundation of America (MGFA) is the go-to resource for this! They offer an emergency medical alert packet and card specifically designed for people with MG.

The packet includes:
- An explanation of MG for medical personnel
- A list of medications that can worsen MG (super important for ER visits!)

You can visit the MGFA website at myasthenia.org to request or download these materials. As one MGteam member shared, they used to carry the alert card in their wallet, and it helped medical personnel when they weren't able to answer multiple questions themselves.

It's also a great idea to travel or go to any appointment with:
- A list of your current medications
- Your doctor's phone number
- Emergency contact information
- General medical history notes

Being prepared can make a real difference in an emergency situation! 💪

August 31
A MGteam Member

Thank You so much for asking this Carol! After my mini-crisis last month I asked my neurologist about a card and was told, ‘well you can make one up! This is such a great help 🫡

August 31

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