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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Where can I find a relatively detailed description in printed form of all aspects of MG that can be handed out to all concerned parties?

A MGteam Member asked a question 💭
Vero Beach, FL

Internet references are not enough; most won't trouble to read them. And many truly need them: nursing home CNA's and LPN's, friends, relatives and others. I'm wanting more a detailed explanation of symptoms that gooses empathy and also gives a basic explanation of what MG is physically. I don't know about others, but having no nuclear family I find none of those on whom I'm forced to rely are sufficiently interested to educate themselves about MG or to make an effort to understand what I'm… read more

August 16
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Reactions
A MGteam Member

Thanks! That would be just the thing if it weren't so freakily sexist.

August 17
A MGteam Member

Someone posted this poster on our site.

August 17
A MGteam Member

Well, no, I don't agree Mr. AI. Please DO show me where on the net I can find out how to get the resources to which you refer.

August 16
MGteam

What a thoughtful and practical question — and honestly, a really important one. You shouldn't have to spend your limited energy repeatedly explaining your condition to the people around you.

The Myasthenia Gravis Foundation of America (MGFA) is the best starting point. They offer a printed awareness toolkit that includes Show Full Answer

What a thoughtful and practical question — and honestly, a really important one. You shouldn't have to spend your limited energy repeatedly explaining your condition to the people around you.

The Myasthenia Gravis Foundation of America (MGFA) is the best starting point. They offer a printed awareness toolkit that includes well-designed materials specifically made for sharing. These include:

- Fact sheets explaining what MG is physically
- Information about symptoms
- Materials designed to build understanding and empathy

You can contact the MGFA directly to request printed copies of their materials. Their resources are designed with exactly this kind of outreach in mind. For nursing home staff specifically, the MGFA also provides an emergency medical alert packet that explains MG and lists medications to avoid. This is particularly useful for CNAs and LPNs who may not be familiar with MG. An MGteam member noted that this kind of card helped medical personnel when they weren't able to answer multiple questions themselves.

Contacting the MGFA by phone at (Phone number can only be seen by the question and answer creators) is likely your most direct route to getting printed materials sent to you without needing to navigate websites yourself.

August 16

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