I have had a headache from day one. The tired feeling comes any time it wants to. In the beginning both arms would hurt like hell until I started with the 2 steroids I was taking. Now when I feel like I need something more I take pyridostigm 1 60mg only one every 12 hours. It helps but sometimes I get a little diarrhea. You have to make choices once in awhile.
July 21
My Doctor stared me slowly with steroids and added more until the maximum. Then after a few weeks took me down to 5mg of pregnazon.
I had a second opinion with another neurologist who did the opposite. He said my Dr did everything right except he would blast the MG with steroids then slowly go down.
Which is the standard way of doing it?
I have not read about anyone else having better eye sight from MG.
July 21
That is such wonderful news β no restrictions on your driver's license for the first time ever! It sounds like your treatment is really making a difference, and that deserves a moment of celebration! π
MG treatment is highly personalized, but there are some common approaches that doctors typically use. Here's a general Show Full Answer
That is such wonderful news β no restrictions on your driver's license for the first time ever! It sounds like your treatment is really making a difference, and that deserves a moment of celebration! π
MG treatment is highly personalized, but there are some common approaches that doctors typically use. Here's a general overview:
- Pyridostigmine (Mestinon) β Usually the first line of treatment, it helps improve communication between nerves and muscles
- Immunosuppressants β Medications like prednisone or azathioprine help reduce the immune system's attack on muscles
- IVIG (Intravenous Immunoglobulin) β Temporarily adjusts the immune system to relieve symptoms
- Plasma exchange (Plasmapheresis) β Removes harmful antibodies from the blood
- Thymectomy β Surgical removal of the thymus gland, recommended for some people with MG
- Newer targeted therapies β Such as eculizumab or efgartigimod, depending on antibody status Your neurologist will tailor treatment based on your specific antibody type, symptom severity, age, and overall health. What works brilliantly for one person may need adjusting for another.
It's also worth knowing that some MG treatments, particularly long-term corticosteroids like prednisone, can have side effects on the eyes over time, such as cataracts or pressure buildup. So keeping up with regular eye exams is still a smart move even when things are going well!
July 21