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I have generalized MG and was diagnosed in February 2026 but had symptoms for over 4years.

July 18
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A MGteam Member

I too had a thymectomy. Mine was Dec. '25. I was not aware that there was not immediate relief and in fact had a flareup in March. One question is when should one get new bloodwork? 2nd question I was originally diagnosed with the antibody type. Is there any reason to have all of the different types of MG bloodwork (3 that I know of) performed i.e. antibody, Musk etc. and when should I get the testing? 3rd question Does the antibody test determine the dosage of the Pyridostigmine/Mestinon?

July 22
MGteam

A thymectomy is a surgery to remove the thymus gland, which plays a big role in MG symptoms by producing antibodies that block nerve-to-muscle signals. For generalized MG, it's a commonly recommended option and many people do see meaningful improvements.

Here's what the numbers generally look like:

- Around 70% of people Show Full Answer

A thymectomy is a surgery to remove the thymus gland, which plays a big role in MG symptoms by producing antibodies that block nerve-to-muscle signals. For generalized MG, it's a commonly recommended option and many people do see meaningful improvements.

Here's what the numbers generally look like:

- Around 70% of people see some improvement after the procedure
- 20% to 40% may reach remission
- Some studies show remission rates as high as 40% to 60% within five years, depending on how much thymus tissue is removed One important thing to keep in mind — patience is key. Benefits can take months, sometimes even a year or two, to fully show up. Most people continue their medications after surgery, though doses may be reduced over time. MGteam members have shared a range of experiences:

- One MGteam member said their double vision disappeared immediately after surgery, with zero chest pain even the day after — calling it "a life changer."
- Another MGteam member shared that while full remission didn't happen, the constant threat of respiratory failure was no longer an issue after their thymectomy.
- One MGteam member noted it took a few years, but the thymectomy eventually "kicked in," with double vision now only occurring occasionally.
- A MGteam member shared that their daughter improved in many ways post-surgery but still experiences some ongoing symptoms like double vision and low endurance. It's also worth knowing that a 2023 study flagged a possible link between thymectomy and a slightly increased risk of cancer and mortality — so it's definitely worth having a thorough conversation with your doctor about both the benefits and risks before deciding.

Given that you've had symptoms for over four years and have generalized MG, your doctor is likely weighing those factors carefully in making this recommendation. Regular follow-ups with your neurologist after surgery are really important for tracking progress and adjusting treatment as needed.

July 18

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