She does this has never happened before idk what went wrong, so now she dont wanna do the ivig at all she was very sick
July 10
Does she do any premeds? I got Aseptic Meningitis from an IVIG infusion once and my home health nurse was able to call the doc, get orders, and treat me at home.
July 10
That sounds really scary — hopefully your daughter is feeling better now. It's completely understandable to want to explore other options after an ER visit. There are several alternatives that her doctor may consider.
Immunosuppressant medications are commonly used to help calm the immune system's attack in MG. These Show Full Answer
That sounds really scary — hopefully your daughter is feeling better now. It's completely understandable to want to explore other options after an ER visit. There are several alternatives that her doctor may consider.
Immunosuppressant medications are commonly used to help calm the immune system's attack in MG. These include:
- Azathioprine
- Mycophenolate mofetil
- Cyclosporine
- Tacrolimus
- Rituximab
- Cyclophosphamide
- Corticosteroids (like prednisone) Plasma exchange (also called plasmapheresis) is another option. It works by filtering harmful antibodies out of the blood. It's typically a short-term treatment, and symptom relief can last several weeks to months. There's also a subcutaneous immunoglobulin form (injected under the skin rather than through an IV) that studies suggest may offer similar benefits to IVIG but with fewer serious side effects. It can even be administered at home. However, more research is still needed specifically for MG. Complement inhibitors are a newer treatment category. Eculizumab (Soliris) was recently FDA-approved for patients aged 6 and older with generalized MG who test positive for AChR antibodies.
It's really important to speak with her neurologist soon about what happened and which alternative would be the safest and most effective path forward for her specific situation.
July 10
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