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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
July 7
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Answer Summary

Members with myasthenia gravis shared concerns about CellCept raising blood sugar and blood pressure, with several noting they had already... Read more

Members with myasthenia gravis shared concerns about CellCept raising blood sugar and blood pressure, with several noting they had already struggled with glucose spikes from prednisone and were frustrated by the cycle of side effects. One member pointed out that research suggests CellCept can raise blood sugar in about 50% of users, while others reported thinning hair and tinnitus, though some felt the trade-off was worth staying out of MG crisis. A recurring theme was the emotional exhaustion of navigating treatment options, with members encouraging each other to keep advocating, research alternatives like Azathioprine, and never give up.

A MGteam Member

My bp was fine until cellcept.
Read up on the contraindications. It's a great medicine but all good things come with a caviat.
I also got tinnitus and thinning hair. Some people got curly hair.
I wish I got the curly hair😎

July 11
A MGteam Member

It is very frustrating!!! Ask to try another drug? Do your own research also, when cellcept was suggested to me I refused to take it because of all the side effects.
Unfortunately all drugs have side effects , and some can cause cancer 😩 as I have said many times, it is trial and error.
Wishing you all the very best

July 10
A MGteam Member

I just looked up cellcept use for people with mg and it can raise blood sugar in 50% of people who use it. It can also raise blood pressure. I don't feel like taking it anymore.

July 9
A MGteam Member

CellCept is in a class of meds that also includes Imuran (Azathioprine). I’ve been taking Azathioprine for 13-1/2 years for my AChR-Ab+ gMG. It’s remained very effective, and I’ve never experienced the kinds of side effects you’ve reported as related to CellCept. Might be worth a discussion with your neuro.

July 13
A MGteam Member

Thank you. I guess there's always a trade off. Lots to consider.

July 11

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