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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I was wondering about how many people were on statins before being diagnosed, and if so did you stop taking them and what happened?

A MGteam Member asked a question 💭
Greensboro, NC

I was diagnosed in May with MG which started with double vision, and then I was positive with AChR Binding being high. The day after this result, I researched MG, and saw research/notices in the UK and now the US showing a link and immediately stopped taking it (after contacting my Dr. who concurred). Within a couple of days my double vision got better, before I got on Prednisone. This could be coincidental, but I think there is a link. Any thoughts?

July 1
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A MGteam Member

My husband was on statins & when he had complex issues with a liver cyst, gi bleeds, and more at the end of last year they stopped them & now say he has a statin allergy. He stopped them in December. Was diagnosed with MG in June.

July 13
MGteam

That's a really interesting observation, and you're not alone in noticing this connection. Research has shown that statins can worsen MG symptoms in some people, and there are even reports of statins potentially triggering MG in certain individuals.

The good news is that studies have generally found that once statins are Show Full Answer

That's a really interesting observation, and you're not alone in noticing this connection. Research has shown that statins can worsen MG symptoms in some people, and there are even reports of statins potentially triggering MG in certain individuals.

The good news is that studies have generally found that once statins are stopped, symptoms tend to improve — which lines up with what happened for you. It's worth noting that not everyone with MG reacts to statins the same way. Scientists don't yet fully understand why statins affect some people with MG and not others.

If cholesterol management is needed down the road, it's worth having a conversation with your doctor about alternative options, since they can monitor closely for any symptom changes if a statin is ever reconsidered. Your experience of double vision improving after stopping the statin — before even starting Prednisone — is a compelling personal data point. Whether coincidence or not, the timing is hard to ignore!

Other MGteam members may have had similar experiences worth exploring in the community discussion threads.

July 1

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