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Yes it effects me also and I love working outside. So I bought an ice vest, and a hat with a fan in it, and go outside at 7 am. I refuse to give up my pleasure MG in not winning!! I stay outside for 😊3 hours, then Im done for the rest of the day and feel good about myself 😆 🤣. I lay in my bed and order in food loving it!! Ok team hope this helps. 👌 OH I do container gardening above ground, been doing that over 30 years.
Heat does affect my MG as well. Heat exhaust me and makes my breathing worst. It also makes my muscles weaker it seems my body has to work harder when it's hotter outside. So any outside activities are planned in the early morning or in the late evening when it's cooling off. The humidity in Georgia is also a huge factor that adds to the heat problem as well. It's something I have had to learn to adjust to and staying hydrated is also a key part of dealing with heat and MG. Best of luck to you and my prayers are with you 🙏
Heat is a well-known trigger for worsening MG symptoms. It's thought to interfere with the signals between nerves and muscles — which are already under stress with MG. Interestingly, MG hospitalizations happen more often in summer, and new MG cases are more likely to be diagnosed during hotter months.
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Not the best!!
I felt like a limp spaghetti noodle this morning outside. It was very humid but not very hot yet. I just had IVIG infusions ending Monday. It could have been worse though, much worse. Breathing was so so, partly from my asthma.
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