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I have ocular and generalised mg,treated with prednisone,mestinion ,Ivig and zilbrqs sc. .My strenght is not good .The results are from one test to be repeated in 3 weeks

April 23
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5 Thyroid Issues With Myasthenia Gravis: Graves’ Disease, Hashimoto’s Thyroiditis, and More Read Article...
A MGteam Member

I had my thymus removed bc it had a growth on it. That has been 4 mo ago. While a thymectomy is listed as a form of treatment for MG, I recently had an ocular flare up even though I do have MGg generalized which was causing slurred speech and generally tongue issues. So had to have the thymectomy but it doesn't appear to have helped with my MGg. There is documentation to support not having the surgery especially over a certain age. The thymus plays a significant and important role in immune function. Do your own research. If I had not had the growth, I am not sure I would have. Do your own research on the subject!

April 27
A MGteam Member

My doctor ays I should have my thymus gland removed,even thought I’m 65 ,is this suitable

April 25
MGteam

That's a lot to be managing at once — ocular and generalized MG alongside thyroid concerns is genuinely a lot on your plate. Thyroglobulin (Tg) levels and thyroid nodules are really something your doctor needs to interpret in full context, so waiting for that repeat test in 3 weeks is the right move.

What is worth knowing Show Full Answer

That's a lot to be managing at once — ocular and generalized MG alongside thyroid concerns is genuinely a lot on your plate. Thyroglobulin (Tg) levels and thyroid nodules are really something your doctor needs to interpret in full context, so waiting for that repeat test in 3 weeks is the right move.

What is worth knowing is that people with MG are more likely than the general population to develop thyroid issues. The two most common are:

- Graves' disease — causes an overactive thyroid (hyperthyroidism)
- Hashimoto's thyroiditis — causes an underactive thyroid (hypothyroidism) Importantly, having Hashimoto's alongside MG has been linked to more severe MG symptoms, which could be relevant given that your strength isn't where you'd like it to be right now.

It's really worth raising this connection with your neurologist and endocrinologist together, as thyroid issues can influence how well your MG is controlled. Don't wait — bring it up before that repeat test if possible.

April 23

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Middletown, NY