Answer Summary

Members connected over concerns about hair loss while taking Mestinon and CellCept, with several sharing they experienced similar thinning and... Read more

Members connected over concerns about hair loss while taking Mestinon and CellCept, with several sharing they experienced similar thinning and one member noting they had to change medications as a result. Many community members described practical coping strategies and knowledge, including that prednisone can cause hair loss that may take six months to a year to grow back after tapering, that post-menopausal hair changes are also a factor, and that getting a fun wig can be an empowering way to keep moving forward. A recurring theme was acceptance and resilience in the face of yet another challenging symptom, with members reminding each other that while hair loss is frustrating, they've survived much worse and can handle this too.