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Perhaps your doctor only knows about ocular MG. Most doctors arent versed in MG. Its a rare disease. Less than 150k people in the US have it.
Have you had an emg?
Have you listed your daily symptoms?
Muscle weakness in eyes, mouth, swallowing difficulties, shortness of breath, I had this feeling of anxiety at night and it was related to my breathing.
Don't just look for symptoms that are MG related, our bodies are from head to toe muscle miscommunication with that neuro transmitter junction.
Headaches
Stabbing pains feels like neuropathy
Muscle twitches anywhere
Sleepy wanna nap all the time for no reason
Coughs that won't stop
Loss of balance
Legs heavy
Feet drag
Sudden loss of energy
MG exacerbates everything?
Then when you see the doc again ask about the EMG? Electromiocardiogram
Perhaps you can have one done in a hospital. It can be painful. But try to endure if you go for one🙏🏿
The ice test as well.
We must advocate for ourselves.
I hope I was helpful 😎
I also had a nerve test done at UVA medical center and kept me on it.I have the muscle weakness.This doctor don't do blood work for myasthenia since 2yrs.ago
Why might your doctor now be uncertain about your myasthenia gravis diagnosis?
It sounds confusing and frustrating to be on treatment for two years and then hear uncertainty about your diagnosis. Let's break down what might be happening.
Pyridostigmine is commonly used as both a treatment and a diagnostic tool for Show Full Answer
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