Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
All Resources Treatments A-Z Personal Assistant Help Center Crisis
Powered By
Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I've had to tape my eyelid open for about 6 months. What other options work for being able to see?

A MGteam Member asked a question 💭
Elma, WA

I've been on Vyvgaart, am finishing Imaavy infusions this month, and starting Zylbrysq daily self-injections in January. I'm also on Mestinon and CellCept.

If I don't tape things above the eye, I'm mostly blind. Right eye is closed most of the time and the left eye gets taped during the day.

December 16, 2025
 · 
Be the first to react
A MGteam Member

Hey Dan, my left eye lid stopped working and stayed that way for a year and a half. Then the eye lid surgeon did his thing and it failed. He had 3 blood tests done and they all came back positive for MG. My gp started me immediately on prednisone and azathioprine and the eye lid opened up the next day and has worked perfectly for over 3 years now.
Cheers, Bill Z

December 17, 2025
A MGteam Member

They say prisms glasses can work I just had scare tissue on both eyes still have double vision and the dr told
Me prisms wont worl. If I rest my eyes its not to bad. Having issuess seeing hope this makes sense

December 16, 2025
MGteam

What other options are available for managing severe eyelid drooping when taping is your current solution?

It sounds like you're dealing with significant ptosis that's really impacting your vision. The good news is there are several other options beyond taping that might help you see better.

Medical devices and aids that can Show Full Answer

What other options are available for managing severe eyelid drooping when taping is your current solution?

It sounds like you're dealing with significant ptosis that's really impacting your vision. The good news is there are several other options beyond taping that might help you see better.

Medical devices and aids that can help:

* Ptosis props or eyelid crutches - small bars that attach to your eyeglasses to hold your eyelids up
* Prism lenses - special eyeglasses that can help if you're also experiencing double vision
* Eye patches - covering one eye might help with vision clarity if double vision is an issue
* Cold compresses - applying ice packs for up to 20 minutes can provide temporary relief by helping muscles contract

Surgical option:

Eyelid surgery (ptosis surgery) can permanently lift droopy eyelids. A MGteam member shared: "Pyridostigmine didn't work for me. I had to have the ptosis surgery to keep the eyelid up." Since you're already on Mestinon and CellCept, and transitioning between newer treatments, it's worth discussing with your neurologist whether adjusting your current medication regimen might help. Sometimes it takes time to find the right combination.

Your ophthalmologist can fit you for ptosis props or prism lenses, which many members have found helpful. Given how significantly this is affecting your daily life, discussing the surgical option with your eye specialist might also be worthwhile.

Hang in there - you're not alone in dealing with this challenging symptom.

December 16, 2025

Related Questions

View All

Options for Drooping Eyelids?

A MGteam Member asked a question 💭
Elma, WA
December 30, 2025

What helps lift the eyelid for ocular emg

A MGteam Member asked a question 💭
Port St Lucie, FL
April 5

MRI for Myasthenia Gravis: Brain Findings To Rule Out Other Conditions
9 Treatment Options for Myasthenia Gravis: Medication, Surgery, and More
Myasthenia Gravis and Dental Work: What To Know and How To Lower Your Risk
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In