"Be strong and courageous. Do not fear or be in dread of them, for it is the Lord your God who goes with you. He will not leave you or forsake you. Deut . 31:6

AMEN JILL, AMEN!!!

I thank God every day for allowing me to be able to share His love with others, in the midst of Myasthenia Gravis. When we share God's love from our struggle, THAT is the strongest testimony.

CindyGass,
If I may.
Their stories are not your story. Nor will it be your testimony before God.
He will say well done my child. And until that day comes,
Be strong in the Lord and the power of His might.
Lean on Him and let Hus strength, courage and endurance be yours. He heals in His time not ours.
🙏🏿🙏🏿🙏🏿❤️
Stay hopeful 😎

Hi! Having a chronic permanent snowflake illness is challenging. After my diagnosis of generalized seronegative MG I went through a bit of transition , surprise, anger, despair , recovery phase , acceptance and FEAR of the unknown .
The fear of what can happen day to day is ever present and after awhile I had to let it go and just LIVE .
Adjust your life and enjoy the little things, find your joy and be thankful and feel blessed for what you can accomplish on a daily basis.
Pacing and not being so in a hurry to do what your brain tells you, all the activities you want to do when you wake up in the morning and your body says NOPE , not happening slow down !
The most important thing is to be educated about your illness , become your own medical advocate and have a great support system in the right type of doctor for MG . ( NEUROMUSCULAR NEUROLOGIST ) Treatment options can be terrifying with all the side effects , just hope for the right MG treatment cocktail and wait for a positive response. Keep your mind open to accepting some treatments can work for you and others not so much.
Consider options to decrease your stress , mindfulness , Tai Chi, Chi Gong , acupuncture, singing , writing songs, poetry, dancing, journaling , reading ,arts & crafts , mild gardening , counseling ....the list goes on and on, whatever makes you calmer and able to function daily.
Find healthy distractions . Help others with your skills .
Make time to Interact and receive support from your family and friends.
Try to schedule activities with rest periods with friends and family to look forward to social activities.
Some days are good , some bad and some in-between not so good .
Not everyone understands your MG struggles and it is what it is.
Having your favorite ER and hospital nearby is reassuring when needed and yes we become frequent flyers. I have a cheat sheet of my diagnosis, my symptoms and treatment paperwork , available for my spouse to give to the ER or hospital when things go sideways.
Your MG journey is your new life story to live. FEAR is part of your story and will come and go depending on how your MG day is going . It will improve as you mature in your MG experiences.
Make it a gift and LIVE as well as you can.
Have FAITH and find your Grace .

Honestly I learned early on that I was not going to let mg win. I have learned to listen to my body and when I get any hint of a flare, I tone it down and rest. I manage the mg, it does not manage me. If your meds aren’t working, talk to your dr. Learn your triggers but don’t give up. Stress, extreme heat and extreme cold are my worst triggers. If I overdo things, I make sure I rest after. I try to make the most of life and enjoy as much as I can.