Tenho MG ocular, mas com sintomas no corpo também. Sou SORONEGATIVA e REFRATÀRIA, não respondi ao mestinom e tenho problemas estomacais para tomar medicação. Estou focando meu tratamento em horas de sono limpo, descanso programado por dia, alimentação saudável, diminuição de fatores estressantes, exercício físico na medida do possível e psicoterapia.
I do what I can each day ,some days or even parts of days ,better in the mornings tired in the afternoon and pick up a bit later ,I do push myself though and try not to give into tiredness,even if means walking and stretching only a little bit on those days
Speaking as someone who exercised vigorously. I walked 6 miles a day in 90mins, that's a round trip, worked out with free weights, had a treadmill at home, gym membership, loved outdoor activities. Always the 1st to volunteer at my kids schools. Girl scout leader, boy scout mom, i was there for all their activities, athletics, math & science olympiad, school chior, art and singing competitions, school trips, pta. Supermom. I wouldn't change any of it.
MG makes you regroup, reorganize and take stock of the time you can do things in a good healthy manner.
Stay hopeful 😎
I have seronegative generalized MG as well. I have great difficulty with repetitive tasks. Even folding laundry has recently been an issue. But when I am not having a flare I have in the past worked with my physical therapist to carefully get back into exercise. The best form of PT for me has been finding a physical therapy office that has a pool & I get some gentle exercises done in the water before moving on to exercises out of the pool. If I have been stuck in bed after a PT session for a few days then I know I have overdone it & we modify or even take a break for a week or so before starting again. This isn’t an easy disease I know & I am sorry you are struggling.
Question: Should I continue exercising even though I experience muscle pain for four days afterward? I have ocular MG with body symptoms, am seronegative and refractory, and have stomach issues with medication.
Exercise can be beneficial for MG patients, but it's crucial to modify the approach to prevent prolonged recovery Show Full Answer