I’m on a host of medications ,however although I’m stronger in the morning and my eye lids stay up by mid afternoon I start becoming tired and have to rest
July 25, 2025
ThsnkQ to all who helped xxxxx
August 2, 2025
Yo estoy igual llevo 2 meses desde que me encontraron a enfermedad y no tengo vida estoy drogada todo el dia cansada aveces no lo entiendo me ha venido muy grandevtodo esto
August 1, 2025
Oh Gosh I’m sorry the steroids aren’t helping. Ironically I am on Pyridostigmine, Cellcept & IVIG & feel like you do & I just started on a higher dose of steroids & it’s starting to help thank goodness. Does your neurologist have you on anything else?
July 25, 2025
Question: What can I do when experiencing severe fatigue, weakness, and steroid treatment doesn't seem to be helping with my generalized MG?
It's crucial to maintain open communication with your neurology team about these symptoms. When MG treatments aren't providing relief, your doctor may need to
- Adjust medication Show Full Answer
Question: What can I do when experiencing severe fatigue, weakness, and steroid treatment doesn't seem to be helping with my generalized MG?
It's crucial to maintain open communication with your neurology team about these symptoms. When MG treatments aren't providing relief, your doctor may need to:
- Adjust medication dosages
- Consider alternative treatments
- Add physical or occupational therapy to your plan For physical therapy considerations:
- Schedule sessions in the morning when strength is typically better
- Time sessions 1.5-2 hours after taking pyridostigmine
- Start with low-intensity exercises
- Take breaks when needed
- Watch for increased symptoms like ptosis during activity
Remember: Muscle weakness tends to worsen later in the day, so managing activities earlier can be helpful. IMPORTANT: If you experience any breathing difficulties along with your weakness, seek immediate medical attention. This is a serious symptom that requires urgent care.
July 23, 2025