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I think doses are all related to symptoms. There is no set dose, at new diagnosis I think they are trying to get the symptoms under control and then dosages can go up or down. I took very large doses of Prednisone to get things under control for me in the beginning and my dose was constantly going up and down. Mestinon did not work at all, but I also have Musk MG. I have been in total remission now for 5 years, so there is hope!
I started on Mestinon right after my initial postive diagnosis in 2022, and since then dosage has varied between a high of 180 mg/day, to my current dosage of 25 mg twice a day.
Medication dosages for myasthenia gravis are highly individualized based on symptom severity and how they interfere with quality of life. For prednisone and other corticosteroids, doctors carefully balance effectiveness against potential side effects like:
- Weight gain
- High blood pressure
- Changes in blood sugar
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If you're having problems with the dosage talk to your doctor first. Send a message to the office or something like that.
I take mine in the morning before breakfast and in the evening before or after dinner
But never at bed time. It works best during the time you're active.
Follow Doctors orders! Myasthenia Gravis is the snowflake disease. It doesn't affect any two people the same way. The medications are similar different doses for different people.
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