Finding the right doctor who understands myasthenia gravis can be challenging. While waiting for specific doctor recommendations, here are some tips from MGteam members:
• Ask your primary care physician for referrals to neurologists who specialize in neuromuscular conditions
• Contact major medical centers/teaching Show Full Answer
Go to resources in the menu above and just ask a question there too. Resources is one. Q&A will get information right away.
There are doctors on her to consult and advocate for you to get a doctor.
I hope this helps.
Thank you...a search last night found a specific center and. Specific Dr. .I wrote that info down, somewhere. It was something like, center for difficult neuromuscular disorders and the Dr specialized in overlapping diseases; diseases like mine, general dystonia with myasthnia gravis. Just a name 200
Seek out and search for a Neurologist with either a focus in MG or Neuromuscular. There are some MG sites that also have search tools to help you locate the nearest one in your area.
You know somehow I remain hopeful despite having been turned away multiple times. The hard thing is I am afraid to keep searching as being turned away hurts. The one symptom I hate is the difficulty breathing. Scary. One Dr put in a referral for PT, but they won't call me back. If I did not have an overlapping disease, GDystonia, it would be much easier I'm sure. The other symptom I hate is the brain fog, oh my gosh...really. but as long as I still know my name, I'm good.