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We went for a walk yesterday to try to get some exercise. While walking I got short of breath and light headed. I took my oxygen level and it was 84%. I sat and rested for a bit and it returned back to normal. Tried walking again, and it went low again. It was a hot day outside, and I know I do struggle more in the heat normally. I just was wondering if anyone else has experienced a drop in their oxygen levels while excersing/walking etc. ?
My neurologist explained to me that we with MG need to do the breathing count test, take a deep breath in and count out loud until you are out of breath. Under 20 is very serious. With MG, the oxygen is not a good measure as by the time it is low, there is real concern..Please call your health care provider as soon as possible. This is a serious matter to address
Yes, experiencing drops in oxygen levels during exercise is something many MGteam members have reported, especially during hot weather. This happens because MG can affect the respiratory muscles needed for breathing, making them fatigue more quickly with physical activity. When muscles fatigue, they may not be able to Show Full Answer
This is all good to know. Thank you all for your responses. I am reaching out to my doctor.
JulieAsen
The jury is always out on that one for me. I love warmth. Not heat. I think humidity is great. Good for the joints
If I may, just relax and don't sweat it. NG is different for all of us. Try reading some articles from the resource menu. There's a good one that just talks about MG in general. That a good place to start. And there are all types of articles for living with MG, leisure, exercise. Don't freak out when you get the info. And welcome to the community❤
Stay hopeful 😎
I’m curious if everyone with mg has increased problems in the heat? (My ice pack test was positive- waiting for labs-and other appts - not really sure who is next) but I live in south FL, and seem to do better in the heat! I’ve always thrived in warm weather- actually have been told I probably have Raynaud’s as my fingers and toes get cold and stiff soon as it drops below 60.
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