*Minor revision below
I am not a medical doctor. I share my experience and at the end how my doc and I make plans.

I am an unusual case. Since starting treatment with mestinon, I have had 7 surgeries in 2.5 years, the key is having an experienced anesthesiologist that works well with your surgeon.

The risk I know with surgery is respiratory failure from MG perspective. There are other surgery risks too, associated with the procedure and your docs can go over the full spectrum of risks.

I know for me we aren’t planning on thymus removal. I am just sticking with my ultomiris infusion and mestinon.

Some thoughts - you need to weigh how truly miserable this illness makes you as you weigh the surgery. If you go forward with surgery you need to accept you went under surgery and it is possible it won’t change things. Remember any surgery can stress your body. It is possible surgery can trigger respiratory failure during or after the surgery.

You and your regular neurologist know your body. Maybe it just isn’t the time now but you might consider if x happens (have a plan with your docs to revisit if x happens or if you aren’t doing better in x months or after trying y).

The key is communication with your neurologist/team. This is a personal decision and requires expert opinions along with your knowing your body and how you feel.

This is how I would look at this situation. I hope helpful.

Good luck.

I had my thymus gland removed them I was 17 and did go into remission 5 yrs later. It is possible. But I remember reading that after tge age of 60-65? that a positive improvement in your symptoms was not as likely. But this is off of my memory.... Please do some more research specifically for thymectomies on older patients.

Hi Bob. So the success rate us 50 to 70 percent, but the thymus is of little use at 70 years of age. Also as pointed out, surgeries for MG sufferers are risky. I guess only you can decide whether the risk out weighs the benefits. There also is another choice for you to make. Is now necessary or can the decision be delayed into the future.Seems like lots of medical improvements being made for MG recently. Good luck and keep us advised.
Cheers, Bill Z

I agree. One of the risk I read was could bring on mg more

I'm afraid I don't have an answer but I have a question that goes along with this. I was told I shouldn't have any surgeries because I have MG. Although at one point the thymus was mentioned. Why is it safe to have the thymus removed but not have another surgery..?