I also have seronegative MG. It does limit what medication the insurance will cover. I have read that there are some good studies going on in europe for this area. They are testing for new detectable markers.

Sorry to hear. I’m still in the recently diagnosed-still in denial-active, unmanaged phase. gSNMG.

Hi. I’m in the Netherlands. I asked my Neuro about other treatment but I don’t think there is any available clinical that I can join as they’re still in the trial phase of the mestinon and correct dosage /frequency. Told they need to apply more control factors to determine …

I have what is referred to as seronegative MG I don't have detectable antibodies I use pyridostigmine or Mestinon and Cellcept those together have helped maintain my MG I prefer IVIG treatments but my current Neurologist does not want to use that unless I'm in crisis
Unfortunately my former Neurologist moved to Canada and that's a little too far for me to travel now

Good response, Terry! Love the explanation you got from an ER doctor!
Johanna, Terry is right. Being antibody negative limits treatment options, because most meds and protocols target antibodies. Mestinon (pyridostigmine) is probably the most common med for both antibody positive and negative patients.
I have ocular MG, which is more uncommon than generalized MG (gMG), and am frustrated to have found that that diagnosis excludes me from trials and studies as well as treatment options. I'm hoping that eventually that will change.
Wishing you both all the best, and hoping you have a great weekend and a wonderful new week!
❤️ wm