Mary I just have to tell you my good news , for almost 4 years I have struggled with my eyes didn't know what was wrong nor did many doctors finally I had a doctor that notice something and he ordered a MRI and blood work , the MRI came back negative but my blood work showed I had high antibodies for MG so I was sent to a Neuromuscular Neurologist and they put me on Pyridostigmine I thought my world was coming to a end I had terrible diarrhea from the meds and I prayed and prayed its been since February, well I just got prisoms best my eyes have been in 4 years and the diarrhea has stopped I finally have gotten my prayers answered for once in a long time life is worth living , so blessed just had to share with you , good news , never give up.

I had my 4 month follow up routine appointment last week with my Neurologist. My appointment was first thing in the morning and during the appointment, my doctor made mention that I was not becoming fatigued with talking, arm movements, eye drooping, etc. I looked at him and said "I am not sure what you are trying to tell me, but you know as well as I that MG symptoms are not the same from day to day and certainly not the same in severity in any given time throughout the day." Sometimes I truly feel that at every appointment he is judging me, questioning me........... I am pretty frustrated.

Certain of my symptoms come and go. Eye strain and lethargy. Rest always helps. My breathing can be strained but it goes away with rest also.
Some days go by and I have no symptoms at all. Then one day one will pop up and drag me back to my bed.
Meh😶
Stay hopeful 😎
It's different for all of us.

When I can keep a normal schedule, get enough rest, and not overdue I don't often get symptoms. However if I'm super busy and stressed out I definitely seem to get fatigued much easier. I have had two rounds of infusions and after the first I had symptoms reoccur halfway through my break. Now I just finished my second round and I'm waiting to see if symptoms reoccur after 2 to 3 weeks. My neurologist PA and I have a plan so I know what I can add or up if I feel even a twinge of the symptoms coming. Hopefully this will make me be able to have 4 weeks without any relapse.

We UNDERSTAND & you are not alone!!!