They call myasthenia gravis the snowflake disease because each of us are different. We each have our own symptom subset. Some people have problems breathing and others don’t. It’s much better to meet a pulmonologist now when you’re not in crisis, and be able talk explain what is going on yourself. They will be able to better address your question as to whether your shortness of breath is related to your MG or not and possibly run some tests to get some baseline readings now (for comparison later if things change).

I have a pulmonologist as part of my care team. At the onset of my MG I had issues breathing and I knew it was more than just the asthma I have had since childhood. My asthma actually flared up go the first time in 15 years when MG came on. You may have something else going on too. My pulmonologist has some experience with MG, and I would recommend finding one that does. Pulmonary doctors can help track your lung function which helps with the “ is it MG” question we all constantly ask ourselves. Best of luck to you.

Well all my other drs listen to my lungs and say they are clear. Unfortunately it's not happening when I'm at the drs office.

Ty

I go to a pulmonologist because I have copd and the medicine Pyridostigmine produces phelm that makes breathing harder he helps me a lot ❤