Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
November 22, 2024
 · 
Reactions
A MGteam Member

Mine does this before and during a really bad flare. Please call your Dr or don't hesitate to go to the ER

November 23, 2024
A MGteam Member

Dear Nathan, thank you for your message. Yes, this helps me tremendously to hear about others and their experience. My Autonomic Dysfunction started about 6 years ago when all of a sudden I could not walk through my front yard. Felt like I was literally walking through quick sand. After six years of being placed from doctor to doctor, my new neurologist diagnosed me with MG. I hope to be a help to others in this beautiful on line community I am now a part of. Have a beautiful day!

November 25, 2024
A MGteam Member

Yes, MaryGordan, mine is often in that range, and has been at times for years. My GP prescribed Midodrine years ago to combat this, after I was diagnosed by a doctor at John’s Hopkins with “neurally-mediated hypotension.” In my case it’s not clear whether this was caused by MG or whether it is simply part of a neurological condition that made me susceptible to MG. I hope this helps, and that your symptoms are only a side-effect of the medication.

November 25, 2024
A MGteam Member

Mine drops when i take the Mestiton which is supposed to be one of the side effects

November 25, 2024
A MGteam Member

I am normal during the day with medicine control but get cold at night in bed so I think it may dip down a bit lower while sleeping.

November 24, 2024

Related Questions

View All
A MGteam Member asked a question 💭
Grantville, KS

A MGteam Member asked a question 💭
Rocky Mount, VA