Hi Johanna;
Right on the mark. I read some of the comments on MGteam to my wife and it does help describe what is happening to me and to others with MG. Sharing our individual information and situations is helpful to us each understanding what is happening. Ask what you want to know and share what you do know. Can't go wrong.
Cheers,,Bill Z

Those of us who have been diagnosed for a long time know what it's like to want answers and there are none. Family support but it can be rare. Because we don't really have a physical condition that they can see everyday. The ptosis, the tremors, the spasms, the crazy naps that come when you least expect it. We shelter in doors and when we do have good days we cherish them ❤️ MG is not smart. That's what I say now. Our nerves speak a different language our muscles don't understand. And thats scary. Until I actually joined this group I didn't have a working vocabulary that I could use in lamens terms to explain MG to my family and links to share with them. Very few of my family and friends took the time to do the research. Because let’s face it, research is exhausting.
But MGteam has put everything in one spot. All I have to do is click on an article and start reading
Sometimes I will read the same one repeatedly. That is just who I am. MG is different for each of us. But there is more information out now than 15 years, 5 years ago.
Thanks MGteam
And everyone else here stay hopeful😎

Me too.

Margaret, it has been rough for me.