Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
February 25, 2024
 · 
Reactions

Answer Summary

Members responding to a question about Mestinon dosage shared a wide range of personal experiences, with doses varying from 30mg a few times... Read more

Members responding to a question about Mestinon dosage shared a wide range of personal experiences, with doses varying from 30mg a few times daily to combinations of 180mg extended-release tablets plus 60mg as-needed doses. Several members noted that finding the right dose took time and adjustments, and many emphasized the importance of working closely with a neurologist rather than changing doses independently. A recurring theme was that Mestinon works differently for everyone, with some combining it with treatments like IVIG, Vyvgart, Cellcept, or Prednisone for better symptom control.

A MGteam Member

I have given some more thought to why mestinon isn't working for you or anyone.
I read. About how to store mestinon.
It has to be kept in a cool, dark place in its original packaging.
When I started mestinon again last year because I complained it didn't work. I read up on contraindications and that's when I learned this one true thing.
I had been keeping it on my bedside table in a pill holder.
Now I keep it in the drawer in its original container from the pharmacy. And just like that problem solved.
The nurse practioner for my neurologist said I should see results in a couple hours. She was right and 2 weeks later I didn't have anymore bilateral shoulder pain. And fewer headaches.
mestinon causes foot cramps,
For me at night when I go to bed.
Fyi: foot cramps are real with mestinon.
Doc lowered my dosage and I take a shot of pickle juice when i get any type of muscle cramps.πŸ‘πŸΎπŸ˜‰πŸ˜Ž
Stay hopeful

February 2, 2025
A MGteam Member

Wishing everyone, no matter where you are a very Happy Thanksgiving.
Enjoy the day with your Family.

November 28, 2024
A MGteam Member

Hi Joe 3
I am glad you were able to get your medication under control and you are starting to feel better.
Continue to Take One Day At A Time and Make It Count.
God Bless You and Keep You Safe and Healthy.
HUGS

March 20, 2025
A MGteam Member

I was up to two 60 mg tabs four times a day, but the side effects were unmanageable for me. My neurologist knocked it down to one tab three times a day plus a monthly infusion. Works much better.

March 16, 2025
A MGteam Member

I take it 3 times a day. My neurologist told me I can go to 4-5 times a day if my symptoms persist. I only have to go to this higher amount when I am sick.

March 5, 2025

Related Questions

View All
A MGteam Member asked a question πŸ’­
San Bernardino. Calif

A MGteam Member asked a question πŸ’­
Coral Springs, FL