Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Anyone taking mesition and what dosage? I'm taking 1 pill 3 times a day and ir isn't helping much.

A MGteam Member asked a question πŸ’­
San Bernardino. Calif
February 25, 2024
 · 
Reactions

Answer Summary

Members shared a wide range of Mestinon dosages and combinations in response to the question about what dosage works best for myasthenia... Read more

Members shared a wide range of Mestinon dosages and combinations in response to the question about what dosage works best for myasthenia gravis. Many community members described starting at 60mg three times daily and working up to higher doses, with several finding the 180mg extended-release form very effective, especially when combined with 60mg as-needed doses throughout the day. A recurring theme was the importance of staying in close contact with your neurologist to adjust dosing, as some also added treatments like IVIG, Vyvgart, Cellcept, or Prednisone to better manage their symptoms.

A MGteam Member

I have given some more thought to why mestinon isn't working for you or anyone.
I read. About how to store mestinon.
It has to be kept in a cool, dark place in its original packaging.
When I started mestinon again last year because I complained it didn't work. I read up on contraindications and that's when I learned this one true thing.
I had been keeping it on my bedside table in a pill holder.
Now I keep it in the drawer in its original container from the pharmacy. And just like that problem solved.
The nurse practioner for my neurologist said I should see results in a couple hours. She was right and 2 weeks later I didn't have anymore bilateral shoulder pain. And fewer headaches.
mestinon causes foot cramps,
For me at night when I go to bed.
Fyi: foot cramps are real with mestinon.
Doc lowered my dosage and I take a shot of pickle juice when i get any type of muscle cramps.πŸ‘πŸΎπŸ˜‰πŸ˜Ž
Stay hopeful

February 2, 2025
A MGteam Member

Wishing everyone, no matter where you are a very Happy Thanksgiving.
Enjoy the day with your Family.

November 28, 2024
A MGteam Member

Hi Joe 3
I am glad you were able to get your medication under control and you are starting to feel better.
Continue to Take One Day At A Time and Make It Count.
God Bless You and Keep You Safe and Healthy.
HUGS

March 20, 2025
A MGteam Member

I was up to two 60 mg tabs four times a day, but the side effects were unmanageable for me. My neurologist knocked it down to one tab three times a day plus a monthly infusion. Works much better.

March 16, 2025
A MGteam Member

I take it 3 times a day. My neurologist told me I can go to 4-5 times a day if my symptoms persist. I only have to go to this higher amount when I am sick.

March 5, 2025

Related Questions

View All

How long does time released mesition work for. I'm taking 60mg 4 times a day.

A MGteam Member asked a question πŸ’­
San Bernardino. Calif

anyone feel Jittery and shaky on top of the weakness and brain fog?I'm taking 60mg mesition 4 Γ— a day and 5mg of steroids. Just started cell

A MGteam Member asked a question πŸ’­
San Bernardino. Calif

My doctor is suggesting Imuran or cell cept. Any experiences with these?

A MGteam Member asked a question πŸ’­
Henderson, TX

Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a member? Log In