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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How do beverages with caffeine affect your MG?

MGteam asked a question 💭
San Francisco, CA
February 22, 2024
 · 
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Answer Summary

Members shared their experiences with caffeine and myasthenia gravis, with the overwhelming majority reporting that coffee, tea, and... Read more

Members shared their experiences with caffeine and myasthenia gravis, with the overwhelming majority reporting that coffee, tea, and caffeinated sodas have not negatively affected their MG symptoms, and many describing their morning coffee as essential to their daily routine. Several members noted that while caffeine itself hasn't been problematic, the combination of caffeine with prednisone can cause shakiness, rapid heartbeat, or stomach issues, leading some to switch to decaf or reduce intake during steroid treatment. A recurring theme was the importance of listening to your body, with most members finding caffeine helpful or neutral for their MG while a few adjusted their habits based on medication side effects rather than MG symptoms alone.

A MGteam Member

I drink caffeine free diet pepsi or I get very shaky. Only since I started Prednisone.

February 24, 2024
A MGteam Member

Caffeine doesn't bother me but I've lost the taste for sodas.l They taste like I licked a battery. Because of that I lost 35lbs. I count that as a win! for some reason it effects my appetite. And I stopped taking the steroids and Mestinon. I just could not function on the drugs.

February 25, 2024
A MGteam Member

I drink coffee on a regular basis ( 1/2 regular and 1/2 decaf ) and I have no issues.

February 22, 2024
A MGteam Member

I do not drink soda drinks ever, or coffee. I stick to my hot black tea and haven't had any issues that I know of with it.

November 28, 2024
A MGteam Member

The only time I have issues with caffeine is from "coffee" - but not every time. Mysterious. I usually have a daily Coke Zero. The caffeine in that drink doesn't affect me.

February 24, 2024

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