Answer Summary
Members shared their experiences with caffeine and myasthenia gravis, with the overwhelming majority reporting that coffee, tea, and... Read more
I drink caffeine free diet pepsi or I get very shaky. Only since I started Prednisone.
Caffeine doesn't bother me but I've lost the taste for sodas.l They taste like I licked a battery. Because of that I lost 35lbs. I count that as a win! for some reason it effects my appetite. And I stopped taking the steroids and Mestinon. I just could not function on the drugs.
I drink coffee on a regular basis ( 1/2 regular and 1/2 decaf ) and I have no issues.
I do not drink soda drinks ever, or coffee. I stick to my hot black tea and haven't had any issues that I know of with it.
The only time I have issues with caffeine is from "coffee" - but not every time. Mysterious. I usually have a daily Coke Zero. The caffeine in that drink doesn't affect me.
Should I start coffee / caffeinated drinks? Never held since child hood Starting can help in treatment of MG? Age 73
What are common things being used to boost energy levels?