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My Doctor Is Trying To Get Me Approved For IVIG But Would Really Like Me On Vyvgart. What Is Everyone's Experience And Getting Approved?
A MGteam Member asked a question 💭

Current MG symptoms primarily chest wall muscle and diaphragm weakness. Started mestinon today.

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A MGteam Member

I did the IVIG. Even with insurance help it was expensive. 3 hrs a day for 5 days. Did not help one bit.. The side effects of Vyvgart scare me. And from what I've read, as soon as you stop, you start… read more

Anyone Else Have Trouble Sleeping After Being Put On Prednisone? Just Getting About An Hour And Half To Two Hours Of Sleep A Night.
A MGteam Member asked a question 💭

Unable to nap. Just started my first IVIG infusion on Sunday. That seems to be going well. I just feel mentally low today. Idk why. Anyway my neurologist prescribed me some sleep meds. Hope they help.

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A MGteam Member

I nap every afternoon Bill. I get tired for no reason

I’ve Asked Not To Take Steroids If Possible To Side Effects. Is This A Wise Choice Or Should I Think About Trying Steroids
A MGteam Member asked a question 💭
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Myasthenia Gravis Diet: 4 Foods To Eat and 4 To Avoid Read Article...
A MGteam Member

Hi Sherry! I'm so sorry to read about how badly long-term steroids affected you! For a physician to be dishonest about treatment options that your insurance would cover is really awful! Glad you were… read more

I Am Suffering With Voice Stammering While Talking.Did Anyone Had The Same Issue?how To Resolve This Issue? IVIG Not Worked For Me.
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A MGteam Member

Sounds good. I will check with my doctor. Thank you Linda.

A Question For You All. My Neurologist Strongly Suggests That I Avoid Other People. Avoid Dining Out, Shopping, Church, And Other Places.
A MGteam Member asked a question 💭

I assume the azathioprine is the reason, but what does your doctors tell you? Our immunity systems are seriously weakened so I see the reasoning, but... I'm not much of a hermit, but learning to be one.

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A MGteam Member

You guys are in a tough situation for sure. I feel for you and the frustration. This is a tough disease with no real answers. What I have found that helps is to exercise moderately every other day. I… read more

What Do You All Do To Help You Keep Your Strength Going And Give You Joy?
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A MGteam Member

Asthma is Awful.. I take Dupixant for that...works wonders

Has Anyone Tried Rystiggo Treatment For Their Mg?
A MGteam Member asked a question 💭
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A MGteam Member

o.k. thanks for letting me know

If Anyone Is On Vyvgart Or Ultomiris Can You Please Share Experiences Wit Us.
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A MGteam Member

had 2nd infusion. experienced pain going from behind my ears down my jawline. took benadryl and it helped. vision got really off.

Anyone Taking Mesition And What Dosage? I'm Taking 1 Pill 3 Times A Day And Ir Isn't Helping Much.
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A MGteam Member

Having my first IVIG infusion dose on Monday...after having to raise hell about accessing the treatment.

MG And CPAP Machine
A MGteam Member asked a question 💭

I was diagnosed w MG 8 weeks ago. I'm on my third 4 day visit in the hospital. One MG crisis bc of swallowing and breathing. I hv moderate sleep apnea but immediately after the MG was triggered 8 wks ago, I've been unable to use CPAP machine as the air forces itself into my mouth instead of lungs..I look like a chipmunk and it's ever so disruptive to my sleep. I'm not getting air at night and can't breathe. I was still waiting on my first IVIG when I went to hospital for MG crisis 8 days ago. I… read more

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A MGteam Member

Hi Pat
I had already been using cpap for 7 months before my MG diagnosis with no issues. It was only after MG symptoms set in that I now suffocate with it. As of Monday, waiting for new sleep study… read more