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Good morning fellow warriors
I have a question that has been on my mind for quite some time now. I get very short of breath and extremely weak in both arms and legs with just the least amount of exertion. It doesn't have to be repetitive motion to "do me in." Does anyone else find that to be true? This doesn't happen all the time, but right now, I'm really suffering
I crawled under my desk this morning and plugged in a small lamp on my desk and could just barely get back up on my feet. I… read more

September 11
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Answer Summary

Members responded warmly to a question about whether minimal exertion can cause profound weakness in arms and legs with gMG, with many... Read more

Members responded warmly to a question about whether minimal exertion can cause profound weakness in arms and legs with gMG, with many confirming this is a very real and shared experience. Several members described frightening moments of sudden leg weakness in stores, difficulty rising from the floor, and shortness of breath from simple tasks like walking to the mailbox, with heat making symptoms worse for many. A recurring theme was the importance of finding a trusted doctor, exploring specialist referrals, and leaning on community support while navigating limited local care options.

A MGteam Member

Hi Benjamin, yes, I know exactly what you mean. Not only is it life-changing, but very frustrating. I've been active all of my life and it's so hard to watch things pile up and go unattended. I thought at first it was just "old age" but it's definitely more than that. Hope you're having a good day and a good week. Thanks for your nice note. Wishing you all the best. 😀

September 20
A MGteam Member

Yes I read magnesium supplements can worsen MG symptoms

September 15
A MGteam Member

Hi! I just wanted to share that my neurologist told me to stop my magnesium supplement as it can make MG symptoms worse. I dont recall if there was talk about the specific type of magnesium or anything like that but just wanted to let you know. Best of luck with everything on this journey!

September 14
A MGteam Member

Hi Nicole, thanks for the tip. No, unfortunately no rheumatologist in my area. I'm scheduled to see a neuro the first of December, so we'll see what he has to say. Thanks again for your note. Hope you're having a good day.

September 14
A MGteam Member

JMBJIEM2, that's all great advice and I've done all of that in the past. Finally got reconnected with my old neurologist and have an appointment with him in December. Thank you for your thoughts and advice. Hope you're having a good week so far.

September 14

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Omaha, NE

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