Answer Summary

Members shared their personal experiences with wanting to reduce or come off MG medications, with many expressing frustration over difficult... Read more

Members shared their personal experiences with wanting to reduce or come off MG medications, with many expressing frustration over difficult side effects like severe bowel issues, sleep disruption, and blood sugar changes. Several members offered practical tips for managing Mestinon side effects, including eating before each dose, taking probiotics, and adding fiber supplements, while others described working closely with their neurologists to safely adjust or taper medications. A recurring theme was the importance of consulting doctors before making any changes, along with a spirit of gratitude for small improvements and appreciation for the support of others who truly understand the challenges of living with MG.