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A MGteam Member asked a question 💭
Dallastown, PA
August 25
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A MGteam Member

Ok, but could you tell me more. How does it affect you. Do any of the symptoms overlap? I barely know what MG can do to me but I really don't know what mast cell activation is or what it does...
I have some rare things together and they exacerbate everything else. I have thoracic outlet syndrome and MG and it affects my breathing, and especially getting a full breath and exhaling all of it. Mostly I function on the same air in my lungs and wind pipes, I just pant breathe the air in my pipes and I get too much carbon dioxide on the brain. Those are two types of sleep apnea that sleep pulmonologists do not see on their sleep studies but they are the types of sleep apnea that myesthenia patients deal with and they can cause a myesthenic crisis. Now, thoracic Outlet syndrome is a genetic thing that causes your shoulders to compress into your top rib bones. There is a surgery now and that is to remove your top rib bones!!!. I don't want that! I have had lots of surgeries and this one can be addressed with good PTs. There is not a relationship or comorbidity here but the two issues play a strong role each in my severe sleep apnea.
So now, tell me what you know about about mast cell activation syndrome...

August 25
A MGteam Member

Mast Cell Activation Syndrome

August 25
A MGteam Member

Now help me understand, what is MCAS.

August 25
MGteam

That's a great question for the MGteam community! Connecting with others who share similar experiences can be really valuable.

While MCAS isn't a recognized comorbidity of myasthenia gravis, it's always worth discussing any additional health concerns with your neurologist or specialist. They can help determine how managing Show Full Answer

That's a great question for the MGteam community! Connecting with others who share similar experiences can be really valuable.

While MCAS isn't a recognized comorbidity of myasthenia gravis, it's always worth discussing any additional health concerns with your neurologist or specialist. They can help determine how managing multiple conditions might affect your MG treatment plan.

August 25

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