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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hey my achr tests are negative and was never tested for anything else. The doctor just says you are negative and that's that.

A MGteam Member asked a question 💭
Sun Prairie, WI

Here is a picture of me after hair cut and that is result. And daily. Some worse. Is this mg. One side down and other up of mouth.

June 4
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Reactions
A MGteam Member

Definitely get a 2nd opinion.

5 days ago
A MGteam Member

Hey Stacey, I hope you are doing well. I am hoping you had a full work up for stroke or transient ischemic attack. It can be a struggle, I always reccomend patients try and get an advocate as it's super tough, pushing your corner when you feel poorly. A relative or friend or neighbour whose has some time and is sympathetic can be a great ally; you really need to re-evaluate your neurological work up.
ie-
So you're saying it's not MG? right? (and you can get a second opinion, there)
What do I have, then?

I am not familiar with the US system as I am in Europe, I hope you can get the support you need.

5 days ago
A MGteam Member

So are you saying yes it probably is? Also, my sister is high positive on her achr tests.

June 5
MGteam

That sounds really frustrating — being told "you're negative" without any further investigation doesn't feel like a complete answer, especially when you're experiencing real, visible symptoms every day.

A negative AChR test does NOT rule out MG. In fact, about 1 in 5 people with MG don't have AChR antibodies at all. There Show Full Answer

That sounds really frustrating — being told "you're negative" without any further investigation doesn't feel like a complete answer, especially when you're experiencing real, visible symptoms every day.

A negative AChR test does NOT rule out MG. In fact, about 1 in 5 people with MG don't have AChR antibodies at all. There are other antibody types that should be tested for, including:

- MuSK antibodies — found in 30–40% of people who test negative for AChR
- LRP4 antibodies — less common but worth checking
- Anti-striated muscle antibody

Uneven facial muscle movement, like one side of the mouth drooping while the other lifts, can be consistent with MG symptoms such as changes in facial expression and muscle weakness. It would be worth pushing your doctor — or seeking a second opinion from a neurologist — to run these additional tests. A diagnosis can also sometimes be made based on symptoms, nerve conduction studies, and response to medication, even without positive bloodwork. One MGteam member shared that none of their bloodwork was positive, but they were still diagnosed based on symptoms, nerve studies, and medication response.

Don't let one negative test be the end of the conversation. You deserve a thorough workup. 💙

June 4

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Does the test for Mg give the sub type? No one seems to know my sub type.

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Winston Salem, NC
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