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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Was it difficult for you to get a diagnosis for your symptoms? For 1-2 years I was told nothing is wrong with you like I was stupid/crazy.

A MGteam Member asked a question 💭
Las Vegas, NV
April 21
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Reactions
A MGteam Member

Hey Carol, how did your doctor's appointment go? Any changes? Any new medications?
I hope you had a good visit with your doctor

April 23
A MGteam Member

Hi Kay - it was very chaotic computers were down. We were there two hours. He’s going to order some bloodwork and wants me back in six weeks to do a bone density test. We talked about RA medicine. He spoke to my neurologist and she doesn’t want to add any new meds yet since she’s still tweaking my MG meds.dr recommended Tylenol for now if pain persists.,

Thanks for asking

April 25
A MGteam Member

I woke up one morning with a droopy eye so I went to my ophthalmologist and he said your eyes look ok but I do want to order an antibody test and then the fun began.

April 23
A MGteam Member

It wasn't hard for me, "luckily?" I was in the ICU with what turned out to be a Myasthenia crisis, The only symptom I had before that was a slightly droopy eyelid, which I hadn't bothered to have checked out

April 23
MGteam

Was it difficult to get a diagnosis for myasthenia gravis symptoms?

What you experienced is unfortunately very common with myasthenia gravis. Many people face significant delays in getting diagnosed, and it can take up to two years or more for some individuals to receive a correct diagnosis.

The delay happens because MG Show Full Answer

Was it difficult to get a diagnosis for myasthenia gravis symptoms?

What you experienced is unfortunately very common with myasthenia gravis. Many people face significant delays in getting diagnosed, and it can take up to two years or more for some individuals to receive a correct diagnosis.

The delay happens because MG symptoms can look like many other conditions, and they often come and go, which makes them hard to catch during doctor appointments. This can leave people feeling dismissed or doubted, which is incredibly frustrating.

Why diagnosis takes time:

- Symptoms vary greatly from person to person
- Mild symptoms affecting only a few muscles are especially hard to diagnose
- MG can mimic other conditions like brain tumors, multiple sclerosis, or stroke
- Symptoms may not show up during medical appointments

You weren't stupid or crazy—myasthenia gravis is genuinely difficult to diagnose, and your experience of being told nothing was wrong is something many MGteam members have shared.

If you're still working toward a diagnosis or your symptoms are changing, talking to a neurologist who specializes in neuromuscular conditions can help. Keep tracking when your symptoms occur and how long they last, as this information is valuable for getting the right diagnosis.

April 21

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