Low titer and minimal optical symptoms.
March 19
Has your doctor explained why they're questioning your myasthenia gravis diagnosis despite your positive AChR test and response to pyridostigmine?
It's understandable to feel confused when a diagnosis is being reconsidered, especially after you've already tested positive and responded well to treatment. Here are some Show Full Answer
Has your doctor explained why they're questioning your myasthenia gravis diagnosis despite your positive AChR test and response to pyridostigmine?
It's understandable to feel confused when a diagnosis is being reconsidered, especially after you've already tested positive and responded well to treatment. Here are some possible reasons this might happen:
Why a diagnosis might be questioned:
- Low levels of AChR antibodies (low titer) can sometimes be found in people without MG, though this is uncommon
- Symptoms may have changed or improved significantly, leading to reconsideration
- Your doctor may want to rule out other factors that could affect test results
- Newer, more sensitive testing methods might provide additional clarity
What you should know:
Around 85 percent of people with MG have AChR antibodies. If you tested positive and responded to pyridostigmine, these are typically strong indicators supporting an MG diagnosis.
However, your response to treatment and how your symptoms progress over time are just as important as test results. Your doctor may be taking a cautious approach to ensure you receive the most appropriate care.
It would be helpful to ask your doctor specifically what concerns they have and whether additional testing might provide more definitive answers.
March 19
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