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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Hi i just recently had the Achr blood work. Came back negative. Doctor says we don't do any more testing for it. I have all symptoms.

A MGteam Member asked a question 💭
Sun Prairie, WI

What next? My sister had very high on hers and then found out she has ms too. Trying to figure out why I can't have any autoimmune stuff with symptoms to many things.

March 4
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A MGteam Member

So sorry to hear that
Similar to my experience
So I believe my doctor until I had a procedure and under anesthesia I responded like a patient that had myasthenia
Then doctors changed their mind
My bloodwork was also negative
If there is any way change doctors
You could try letting your doctor see you taking notes or ask him if it’s ok to record section sometime you forget section
Hold on tight

4 days ago
A MGteam Member

I'm sorry I did see this before as I was not on the group I would reccomend you ask the headache Dr. to refer you to a neurologist, specifically to have you tested for seronegative Myasthenia gravis or an associated condition. Dr to Dr correspondence is usually taken the most seriously.

4 days ago
MGteam

What should you do if your AChR blood test came back negative but you still have MG symptoms?

A negative AChR test doesn't rule out myasthenia gravis. About 15% of people with MG test negative for AChR antibodies, and some may have other antibodies instead.

You might want to ask your doctor about additional testing options:

- Show Full Answer

What should you do if your AChR blood test came back negative but you still have MG symptoms?

A negative AChR test doesn't rule out myasthenia gravis. About 15% of people with MG test negative for AChR antibodies, and some may have other antibodies instead.

You might want to ask your doctor about additional testing options:

- MuSK antibody test: 30-40% of people who are AChR-negative have MuSK antibodies
- LRP4 antibody test: Some people with seronegative MG have these antibodies
- EMG (electromyography): This nerve conduction study can help diagnose MG even when blood tests are negative
- Response to medication: Some people are diagnosed based on how they respond to medications like pyridostigmine (Mestinon)

A MGteam member shared: "None of my bloodwork was positive, but I was diagnosed on the basis of symptoms, nerve conduction studies, and response to pyridostigmine."

Another member noted: "My diagnosis was not confirmed until I had an EMG. My neurologist was convinced at the first visit that I had MG, but the blood work did not confirm this."

If your current doctor won't pursue further testing, consider seeking a second opinion from a neuromuscular specialist who has experience with seronegative MG.

March 4
A MGteam Member

I will get to see general neurologist in September. That is only doctor I can go to because their answer is no. Including primary doctor. I've tried other clinics besides UW MADISON. I can't drive to travel and obviously can't afford the tests on my own. It was my headache doctor that ordered the achr ones only because I begged him. And that was thrown back in my face when it was negative.

March 29
A MGteam Member

Wow that’s definitely not right! The last resort is to pay out of pocket but many of us can’t afford to do that. Our medical profession sucks at times.

March 29

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Has anyone ever had the SFEMG test done?

A MGteam Member asked a question 💭
Charleston, SC
December 16, 2024