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Real members of MGteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MGteam Member asked a question 💭
St Louis, MO

i was diagnosed 2 years ago and currently on vyvgart hytrulo shot every 42 days. havent had a episode but dont feel like its getting better. just feel the same.

February 23
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MGteam

Are you experiencing eye and tongue twitches, and what helps stop them?

Eye and tongue twitches (called fasciculations) can happen with myasthenia gravis, though they're relatively rare. Tongue twitching may be more common in people with muscle-specific kinase (MuSK) antibody-positive MG.

For eye twitching specifically Show Full Answer

Are you experiencing eye and tongue twitches, and what helps stop them?

Eye and tongue twitches (called fasciculations) can happen with myasthenia gravis, though they're relatively rare. Tongue twitching may be more common in people with muscle-specific kinase (MuSK) antibody-positive MG.

For eye twitching specifically, some helpful strategies include:

* Wearing an eye patch over one eye to reduce eye strain and fatigue
* Using dark sunglasses to help with light sensitivity
* Taking breaks to rest your eyes throughout the day

Since muscle weakness in MG often improves with rest, giving your muscles a break when you notice twitching may help.

It's really important to talk with your MG specialist about these symptoms, especially since you're feeling like things aren't improving on your current treatment. Your doctor might need to adjust your treatment plan or explore additional options to better manage your symptoms.

Feeling "the same" after two years on treatment is worth discussing—your care team can help determine if your current approach needs tweaking or if additional therapies might help you feel better.

February 23

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