Hi Rita, yes I do and it can cause me to slur my speech at times. Resting does help.
February 17
Are you experiencing involuntary tongue movements?
Yes, involuntary tongue movements can happen with myasthenia gravis, though they're relatively rare. These small, involuntary muscle twitches are called fasciculations, and they can occur in any muscle, including the tongue.
This type of tongue twitching may be more Show Full Answer
Are you experiencing involuntary tongue movements?
Yes, involuntary tongue movements can happen with myasthenia gravis, though they're relatively rare. These small, involuntary muscle twitches are called fasciculations, and they can occur in any muscle, including the tongue.
This type of tongue twitching may be more common in people with muscle-specific kinase (MuSK) antibody-positive MG.
It's important to let your neurology team know about these involuntary movements, especially since your husband has noticed them. New or changing symptoms can signal that MG is affecting your body in different ways, and your doctor can help adjust your treatment plan accordingly.
Other MGteam members have experienced various tongue-related symptoms, so you're not alone in dealing with this.
February 17