I have generalized MG! After 3 months my eyes are a bit better. Not every day but some. I’ve had just about every symptom there is. I feel like something is lodged in my throat a lot. Being lethargic is the worse. Not sleepy just an overwhelming sense of exhaustion. It usually hard to explain to people. Only thing that helps is resting and doing nothing which is hard for me. I’m having to say no to things I have always said yes to. I don’t think people understand.
Thank you!
Finding a good support group helps. l sat down with my family and friends and explained what was happening to me. After understanding that l can't " just take a nap" to get rid of the fatigue, it was easier to say l can't.do things like l used to. Just remember, what is happening is in no way your fault. Each day will bring new challanges and new opportunities, try and embrace life.
How do you manage the overwhelming exhaustion with generalized MG?
That crushing sense of exhaustion you're describing is very real and common with MG. Studies show that more than half of people with myasthenia gravis experience chronic fatigue, and it's not always tied to muscle weakness—you can feel exhausted even when Show Full Answer