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A MGteam Member asked a question 💭
Bartow, FL

I have generalized MG! After 3 months my eyes are a bit better. Not every day but some. I’ve had just about every symptom there is. I feel like something is lodged in my throat a lot. Being lethargic is the worse. Not sleepy just an overwhelming sense of exhaustion. It usually hard to explain to people. Only thing that helps is resting and doing nothing which is hard for me. I’m having to say no to things I have always said yes to. I don’t think people understand.

October 27, 2025
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A MGteam Member

Thank you!

October 28, 2025
A MGteam Member

Finding a good support group helps. l sat down with my family and friends and explained what was happening to me. After understanding that l can't " just take a nap" to get rid of the fatigue, it was easier to say l can't.do things like l used to. Just remember, what is happening is in no way your fault. Each day will bring new challanges and new opportunities, try and embrace life.

October 28, 2025
MGteam

How do you manage the overwhelming exhaustion with generalized MG?

That crushing sense of exhaustion you're describing is very real and common with MG. Studies show that more than half of people with myasthenia gravis experience chronic fatigue, and it's not always tied to muscle weakness—you can feel exhausted even when Show Full Answer

How do you manage the overwhelming exhaustion with generalized MG?

That crushing sense of exhaustion you're describing is very real and common with MG. Studies show that more than half of people with myasthenia gravis experience chronic fatigue, and it's not always tied to muscle weakness—you can feel exhausted even when your MG symptoms are controlled.

A MGteam member captured it perfectly: "MG has shown me two very different kinds of fatigue. There's the fatigue of specific muscles, and there is the whole-body fatigue that's not centered in any particular muscle group, a kind of crushing weariness that's relieved only by a long night's sleep."

The sensation in your throat could be related to swallowing difficulties, which many people with MG experience. This can range from feeling like something is stuck to actual trouble with swallowing food or liquid. It's worth mentioning to your doctor, as managing this symptom might help with your overall energy levels. Here's what helps some people manage MG-related exhaustion:

* Rest when your body tells you to—even if it feels frustrating
* Plan activities during times when you feel strongest
* Break tasks into smaller chunks with rest periods
* Write things down to help with any brain fog that comes with fatigue
* Prioritize good sleep, as insomnia affects many people with MG and worsens fatigue
* Eat smaller, more frequent meals if throat symptoms make eating tiring

Setting boundaries and saying no is self-care, not selfishness. Your body needs that rest to function. A MGteam member shared: "If I don't lie down, I'll fall down"—listening to those signals is important.

Talk to your doctor if the fatigue is severe or worsening. Sometimes it's connected to related conditions like depression or thyroid issues, which are more common with MG. There might also be adjustments to your treatment plan that could help.

October 27, 2025

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