Answer Summary

Members with ocular and generalized myasthenia gravis connected over shared eye symptoms, describing burning sensations, gritty or sandy... Read more

Members with ocular and generalized myasthenia gravis connected over shared eye symptoms, describing burning sensations, gritty or sandy feelings, sharp stabbing pains, watery eyes, and blurred or double vision that often worsen during flares or medication changes. Several members shared practical strategies including preservative-free artificial tears used every two hours, warm compresses, eyelid wipes, FL-41 tinted glasses for light sensitivity, Omega-3 supplements, resting with eyes closed for 30 to 45 minutes, and seeing specialists like ophthalmologists or dry eye teams for conditions such as blepharitis or macular degeneration. A recurring theme was that standard dry eye treatments often fail during MG flares, medication side effects like bleeding from CellCept or withdrawal symptoms can intensify eye issues, and the profound relief of finding others who truly understand these invisible yet exhausting challenges.