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Ik ben nog in de diagnostische fase. Sero dubbel negatief. Krijg binnenkort een QMG en EMG en 1 vezel spieronderzoek.

March 26, 2025
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Translation of question: "I have excessive and rapid muscle pain, which makes it difficult for me to walk and my arms and neck are less strong. I am still in the diagnostic phase. Seronegative double negative. Will soon have a QMG and EMG and single fiber muscle examination."

It's understandable that you're experiencing Show Full Answer

Translation of question: "I have excessive and rapid muscle pain, which makes it difficult for me to walk and my arms and neck are less strong. I am still in the diagnostic phase. Seronegative double negative. Will soon have a QMG and EMG and single fiber muscle examination."

It's understandable that you're experiencing these challenging symptoms while waiting for a definitive diagnosis. Limb weakness affects about 5% of people with MG, and when it occurs, it usually appears alongside other symptoms. The diagnostic process for seronegative MG can indeed take time, requiring patience during the testing phase. The tests you're scheduled for are appropriate for investigating seronegative MG. A newer, more precise testing method called cell-based assay is becoming more widely available and has shown that approximately one-fifth of people initially thought to be seronegative actually had detectable antibodies when using this newer test. Your symptoms align with typical MG presentations, which can include muscle weakness and fatigue that affects mobility and strength in various muscle groups.

March 26, 2025

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