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Inflamed and you can see that it's like swollen is that normal? She won't see a neurologist till October so we go to a center to do the infusion and I ask the nurse there all she said ask her neurologist
No she doesn't since in our area it's difficult to find pediatrician who deals with mg and the insurance is such a hassle I'm grateful for the fact she is taking them it does make a big difference for her
It is easier for an adult to rationalize the pain vs gain but for a 12 year old it would be scary and harder to accept. Do you have a GP who could intercede on your behalf to get a quicker neurologist appt? Too bad the medical professionals at the infusion center are not more sensitive to your daughters needs and could remedy the pain somewhat.
It sounds like your daughter might be experiencing some discomfort from her intravenous immunoglobulin (IVIG) infusions. Here are some points to consider based on the knowledge base:
- Side Effects: Common side effects of IVIG can include muscle or joint aches, which might explain her arm muscle pain
- Infusion Rate: Show Full Answer
My daughter has been telling me she sees half of her face is down but I dont see it, is that normal?
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