Sorry for all you have been through. Mine doesn't have cancer or any abnormalities. I have just had such a hard time getting the MG under control that dr is wanting to have it removed. I don't get but one or two weeks of relief after a treatment and the back in hospital for another. They just started vyvgart infusion and I am having pretty good results. I get my 4th treatment this Friday and then I have the break they make you take. Schedule to start next treatment 3-4 weeks after the last infusion. I have had a bad day today with strength and fatigue but got out for a littlebit this morning.

Vyvgart was like a miracle to me. After the third cycle, I had no MG symptoms. Improvement began with the first cycle when I took the infusions.
After being off Vyvgart for three months because of a move, all symptoms returned and more.
I was hospitalized and recovered from an MG crisis and have begun Vyvgart again. I hope it works the same the second time around. I will post my results.

How did they do your thymectomy? I am supposed to have it next month but really unsure because of the type surgery. I have recently diagnosed with MG in March and ivig didn't work and just started vlvgart. Will do my 3rd treatment tomorrow.

I have had 1 infusion so far. Get my 2nd on Friday.

Mary6- what a journey you have had. Hope you are now improving and are strong.