Has Anyone Tried Vyvgart? I’m On Mestinon Which Seems To Be Longer Effective. My Neurologist Doesn’t Want To Change My Medication | MGteam

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Has Anyone Tried Vyvgart? I’m On Mestinon Which Seems To Be Longer Effective. My Neurologist Doesn’t Want To Change My Medication
A MGteam Member asked a question 💭
posted April 20
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A MGteam Member

I did Vyvgart and 2 weeks later had a crisis, trouble breathing, ended up hospitalized for months. Didn’t work for me but I know there are several it works great for. Currently trying Solaris with positive results thus far z

posted April 20
A MGteam Member

My understanding is that it does not work for seronegative patients like me.

posted April 20
A MGteam Member

My Urologist doesn't want to try any of the new mods. He says that since the Cellcept is working he doesn't want to change anything

posted April 20
A MGteam Member

I suggest if you haven’t. Find a MG Specialist for your care. Things changed for the better when I changed from just a neurologist to one who specializes with MG. I was able to tell more about MG to my neurologist. He just pushed more dosage which cause issues and numerous crisis. Now with one who just sees MG patients I am doing better. I found her at WVU Hospital. She keeps up with all the new research

posted April 24
A MGteam Member

I was on it for a year and it worked to relieve symptoms, but it stopped working. I am now on Solaris IV infusion which is working. Mestinon I still take with the IV infusion

posted April 23

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