I did Vyvgart and 2 weeks later had a crisis, trouble breathing, ended up hospitalized for months. Didn’t work for me but I know there are several it works great for. Currently trying Solaris with positive results thus far z
My understanding is that it does not work for seronegative patients like me.
My Urologist doesn't want to try any of the new mods. He says that since the Cellcept is working he doesn't want to change anything
I suggest if you haven’t. Find a MG Specialist for your care. Things changed for the better when I changed from just a neurologist to one who specializes with MG. I was able to tell more about MG to my neurologist. He just pushed more dosage which cause issues and numerous crisis. Now with one who just sees MG patients I am doing better. I found her at WVU Hospital. She keeps up with all the new research
I was on it for a year and it worked to relieve symptoms, but it stopped working. I am now on Solaris IV infusion which is working. Mestinon I still take with the IV infusion