Atrial Fib occurred at time diagnosis, but was not diagnosed until years later. MG 2010, AF 2013, and currently CHF 2022.
So a lot of ppl have heart issues in addition to; however, sometimes when the lungs do not get enough air, the heart beats faster to try and compensate. That’s what I’ve been dealing with.
Started as Ocular changed to generalized in 3 months
My old doc said i was in remission in 2015. I had a crisis in 2022 and my symptoms have progressed dramatically. I have intense left side min migraines. Double vision and droopy eye lids both someday, I fall asleep 3-4xs a day, swallowing is difficult most days, I just eat slower and find foods easy to swallow, pain wakes me at night if I lay on my leftside too long. I've had severe muscle pain and weakness in both my arms for over 3 months now. Lately just walking drains me. Prior to 2022 my… read more
Thanks for all the info. I appreciate yall
I've had this disease for about 44 years now, and there is still no cure or even how a person can get this disease.its a sad thing to realize (just sayin)
Getting confusing information from the doctor. Like the disease can't affect this muscle because its not a voluntary muscle yet at the same time he says the side effects are because there are muscles surrounding the organ in question.
Put myasthenia gravis on your list of go to.
Hi, I am Grace. I live in Winnipeg, Manitoba. Where are you from?
I feel stronger after my first treatment plus my face looks better. The muscles on the one side of my face are very week because I had Bell's Palsy before. It seemed to stop my face from dropping so much. The funny thing I've noticed is my pupils are very small since I had the treatment.
Eyes much more open, face more toned, eyes no longer bother by most light, feeling better than I have since 13 years ago.
I received 1 covid vaccine prior to being diagnosed. I had myasthenia gravis symptoms prior to the vaccination. Since being on mestinon I have had covid 1 time.
I had all my vaccines and no issues. I have over 12 autoimmune diseases, problems they’ve caused over the yrs, luminary hypertension, respiratory failure and other lung problems. My specialty doctors… read more